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Ehlers-Danlos Syndrome

Comprehensive diagnosis and treatment for EDS

Are you experiencing joint hypermobility, easily bruising skin, or other connective tissue problems that your doctor has struggled to diagnose? You may consider getting evaluated for Ehlers-Danlos syndromes (EDS) or hypermobility spectrum disorders (HSD) at Casa Colina Hospital and Centers for Healthcare.

What Are Ehlers-Danlos Syndromes?

According to the Ehlers-Danlos Society, EDS are a group of connective tissue disorders that are characterized by joint hypermobility, skin hyper-extensibility, and tissue fragility. Symptoms may vary depending on the form and severity of the condition.

Classified into several distinct subtypes, EDS are genetic disorders that vary both in how they affect the body and in their genetic causes. While there is no cure for EDS, symptoms can be treated to improve mobility and overall quality of life. The three main subtypes of EDS are Classic, Hypermobile, and Vascular.

Symptoms often include but aren’t limited to:

  • Loose or unstable joints
  • Frequent joint dislocation
  • Chronic joint pain
  • Chronic gastrointestinal symptoms
  • Kyphoscoliosis
  • Highly elastic, velvety skin
  • Frequent allergic type reactions
  • Fragile or easily bruised skin
  • Chronic headaches or neck pain
  • Abnormal scarring
  • Slow wound healing
  • Heart valve problems
  • Increased heart rate and dizziness

Evaluation and Treatment

Our program offers effective evaluation and treatment for individuals medically diagnosed with an EDS. If symptoms suggest EDS, we can offer diagnostic testing by history and physical exam, as well as genetic testing (dependent on your insurance coverage) to rule out some of the more uncommon types of EDS.

Once your EDS diagnosis is confirmed, a Casa Colina physician who specializes in EDS will work with your primary care physician to develop a comprehensive treatment plan to alleviate your symptoms and improve your quality of life. Our doctor will perform a comprehensive evaluation including neurological health, heart health, and more, examining symptoms, family medical history, and medical test results. Casa Colina staff will also coordinate annual follow-ups to ensure your treatment plan is continuing to work for you.

Expert Staff

If you or a loved one has already been diagnosed with an EDS, you probably know how hard it is to find clinicians with experience treating this condition. Casa Colina is one of just two regional providers to offer a dedicated EDS program. Our program is overseen by John Fagan, MD, a physician who has more than 10 years’ experience treating EDS. Many of Casa Colina's physical therapists possess orthopedic specialty certifications and can develop a specialized plan to treat your EDS symptoms.

Our program can also refer patients to other specialized clinicians as needed, including:

  • Cardiologists
  • Gastroenterologists
  • Neurologists
  • Neurosurgeons
  • Psychologists/Neuropsychologists
  • Pain management specialists
  • Physical and occupational therapists
  • Radiologists
  • Rheumatologists
  • Urologists

Community Support

Casa Colina recognizes the need for increased resources for individuals diagnosed with EDS. That’s why we offer a monthly EDS support group. Our group offers not only emotional and peer support, but important educational information. For more information visit our Support Groups page.

For more information or to schedule an evaluation with our EDS team, please call 909/596-7733, ext. 3800 or toll-free 866/724-4127, ext. 3800 or contact us now.

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